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Me lo diagnosticaron en el Hospital de Enfermedades Reumáticas en Barcelona. Desde el año 2001 soy paciente del Servicio de Enfermedades Autoinmunes del Hospital Clínico de Barcelona. Socia y voluntaria en “ACLEG” (Asociación Catalana de Lupus Eritematoso Generalizado) en Barcelona. Desde hace unos años, sigo con interés toda la información que pueda tener relación con lo que a mi me afecta sobre la misma. Lo describo como LUPUS y SUS ASOCIADOS (Sindrome de Sjogren, Fibrosis Pulmonar, Sindrome de Jaccoud, etc.) He pensado en hacer este "blog" para que la información que vaya encontrando (noticias, jornadas, opiniones, experiencias, etc.) compartirla con todos los que estéis interesados.

martes, 17 de agosto de 2010

AGRADECER A TODOS LOS QUE HABÉIS COMPARTIDO CONMIGO, ESTE, MI BLOG

Quiero con esta entrada daros las gracias a todos los que habéis compartido este, mi blog. En su día sentí la necesidad de comunicar toda la información que sobre nuestra enfermedad el "LUPUS" encontraba.
Actualmente, hay información y asociaciones de lupus en donde podemos encontrarla, es una enfermedad que ya es más conocida, no digo conocida sino más conocida.
Como soy de Barcelona os derivo a este enlace acleg (Associació catalana de lupus eritematoso), o a cualquiera de los links de este blog.
Un fuerte abrazo a todos.

31 comentarios:

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BOM DIA , TENHO LUPUS, A QUASE VINTE ANOS , ESTOU EM PORTUGAL ADEZ , ATE O MOMENTO NAO CONSEGUIR UM ACOMPANHAMENTO, PRECISO DE AJUDA ,POIS ESTA A ATACAR MEU CEREBRO. POR FAVOR ,AJUDEM-ME! MEUS CUMPRIMENTOS

Graciela dijo...

Buenas noches, soy de Argentina y tengo diagnóstico de Lupus sistémico hace 17 años.Lamento que estes en esta etapa tan negativa pero yo he superado hasta un coma cuatro profundo, se que no es fácil y más cuando lo estamos viviendo pero lo que puedo decirte es que se puede. Quisiera saber tu nombre y como ayudarte, en este momento solo se me ocurre buscar el mail de mi médica que es una eminencia en la enfermedad de lupus, se llama Graciela Araujo - Reumatóloga de aqui de Argentina y en cuanto tenga el dato te lo paso. Ante todo Gracias a quien realizó esta página ya que refleja una gran humanidad. Es una de las características que pude observan en quienes padecen esta enfermedad, es más y estoy segura que no me equivoco que en un alto porcentaje somos personas con una hiper-sensibilidad que es lo que nos llevó a esto.
Un Gran Abrazo y en cuanto tengo el dato te lo paso para que desde lo médico puedas hacerle la consulta que necesites.
Graciela

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Great article. Here is some more information about lupus:

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I really enjoy seeing and hearing about other people with lupus and how they overcome their problems with the disease. Great article on lupus!

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Carme, seguramente no leerás esto, pero quiero estar de alguna forma cerca de ti.

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hola yo tambien me llamo carmen y tengo lupusllevo 5 años con la enfermeda pero desde k me dianosticaron la enfermeda no e vuelto aver al medico y estoy tomando las mismas pastas k memando pero ahora estoy sintiendo mas los sintomas y mepreocupa mucho por k aca en colombia un reumatologo particular cuesta lloro cada k puedo a escondida de mis hijos y digo pork ami pero cuando los veo son mi razon de seguir luchando apesar de k es muy doloroso animo colega k no somos las unicas gracias por este blogger

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Hola, soy de Argentina, les cuento que me lo han diagnosticado en 1995, después de 2 años recorriendo médicos de distintas especialidades. Quiero de alguna forma mandar mucha buena vibra a los que estén pasando por un momento en que la enfermedad esté activa. Las buenas intenciones, el afecto, los mimos, siempre nos ayudan. Con pensamiento positivo, además de todo el seguimiento médico, salí de un ACV,al positivizarze el S.A.F. O bien al encontrarme un foramen oval permeable (no se determinó bien cuál de las 2 causas produjo la lesión encefálica, que por suerte fue temporaria, pero que en ese momento yo deseaba morir..., acá estoy 2 años y medio después recuperada, haciendo controles, pero VIVA Y FELIZ!!!!!! lUCHEMOS Y HAGAMOS COMO DICE LA PRESIDENTA DE ALUA (ASOCIACION LUPUS ARGENTINA) YO TENGO LUPUS, PERO EL LUPUS NO ME TIENE A MIIIIIIII!!!!!!!! Un abrazo a todos y todas.

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